Exeter Ataxia Awareness Campaign 2017

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The South West Branch of Ataxia UK are taking over the city of Exeter this June, sharing their stories and spreading the word about ataxia.

This awareness campaign aims to reach members of the south-west public and healthcare professionals alike to tell them about the ataxias: a set of rare, degenerative neurological conditions that affect balance, mobility and speech.

More than 100 types of ataxia affect over 10,000 people across the UK; but only 10% of the population have even heard of it.

It's probably time you did.

What is ataxia?
Ataxia is the name given to a group of neurological disorders that affect balance, coordination, and speech. There are many different types of ataxia that can affect people in different ways.

Who gets ataxia?
Anyone of any age can get ataxia, but certain types are more common in certain age groups. For example, people with Friedreich’s ataxia are usually diagnosed in childhood or adolescence.

How many people have ataxia?
The ataxias are rare conditions. Estimates from recent studies say that there are at least 10,000 adults and around 500 children in the UK with a progressive ataxia.

Is there any cure?
Some forms of ataxia are treatable, but in most cases there is still no cure. We are supporting research and putting all our efforts in trying to get treatments or cures for the ataxias. See our Research strategy for more information.

What can be done to help?
The South West branch of Ataxia UK are fundraising and campaigning this month in Exeter, and need your help.

To get in touch with members of the South West Branch, please contact Communications Officer Stephanie Marley ([email protected]) or call the office on 020 7582 1444 and head across to their website here: Ataxia Exeter Awareness Campaign


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